Role Title: Research Intern: Rett syndrome physical activity subsite development
Organisation: Telethon Kids Institute (TKI)
Internship Period: Winter (June - July)
The research intern will help to set up a new subpage for families of children and adults with Rett syndrome on physical activity in Rett. It will sit within our existing Rett syndrome webpage (https://rett.telethonkids.org.au/).
Rett syndrome is a rare genetic disorder that affects almost exclusively girls. The disorder impairs these children's communication, hand movements, behaviour, and mobility. About half of these girls learn to walk, and a third walk independently (without assistance). So meeting the World Health Organization guidelines for physical activity is a big challenge for these girls and their families. We have recently completed an international multi-centre randomized controlled trial evaluating ways of increasing physical activity in children, adolescents, and adults with Rett syndrome. The website will report the research in family-friendly language, give background about Rett and physical activity, provide practical strategies for families on how to become more active, and include a section on caring for caregivers. The research intern will work with our international research team and our Telethon Kids Institute digital website team and graphics designer to develop this subpage. The work will involve summarizing research literature simply and clearly in plain, simple English; contributing ideas about presentation and layout of the information; reviewing graphics design options; and liaising with the teams involved in this work.
The Telethon Kids Institute is based within the Perth Children’s Hospital, and is one of the largest, and most successful medical research institutes in Australia, comprising a dedicated and diverse team of around 1,000 staff, students and honoraries. We've created a bold blueprint that brings together community, researchers, practitioners, policy makers and funders, who share our vision to improve the health and wellbeing of children through excellence in research.