Research Intern 1, Literature Review: Supportive interventions available for parents of an infant recently diagnosed with a rare genetically-caused disorder

Role Title: Research Intern 1, Literature Review: Supportive interventions available for parents of an infant recently diagnosed with a rare genetically-caused disorder

Organisation: Telethon Kids Institute (TKI)

Internship Period: Winter (June - July)

Location: Nedlands

Role Description

Rare genetic conditions can be diagnosed as early as the first few months of life. At the time of their child’s diagnosis, parents can feel many complex emotions including stress, a sense of separation from their child and sometimes limited emotional processing. As such, parents of a child with a genetic disability are more likely to suffer from depression and anxiety-related illnesses, whereby mental health difficulties can result in impairments in the quality of parent-infant interactions and infant attachment. Our goal is to support parent wellbeing and parenting attachment of parents of an infant recently diagnosed with a rare genetic disorder.
The Child Disability team at Telethon Kids Institute are seeking two highly motivated interns to begin this research journey with us and help identify available interventions and programs in the literature that aim to support parents of a child recently diagnosed with a genetic disorder. The interns should have an interest in genetic disorders and/or mental health. The successful McCusker Interns will work under the supervision and guidance of Child Disability team members to complete a literature review which will be submitted for peer-reviewed publication. This literature review is an important step which will help inform future grant planning. The interns will also have an opportunity to work on other research projects the Child Disability team are undertaking.

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Organisation Mission

The Telethon Kids Institute is based within the Perth Children’s Hospital, and is one of the largest, and most successful medical research institutes in Australia, comprising a dedicated and diverse team of around 1,000 staff, students and honoraries. We've created a bold blueprint that brings together community, researchers, practitioners, policy makers and funders, who share our vision to improve the health and wellbeing of children through excellence in research.