Role Title: Research Intern: Reducing Stigma for Children and Young People experiencing Neurofibromatosis
Organisation: Neurofibromatosis Association of WA inc
Internship Period: Winter (June - July)
Location: Nedlands
The research Intern will play a key role in supporting our community outreach initiative Reducing Stigma for Children and Young People experiencing Neurofibromatosis.
This involves research to identify any global programs, research or best practice
models that can help inform the project and avoid 'reinventing the wheel'
Conduct research on current marketing trends and community outreach best practices.
The intern will assist the Project Manager project plan and then start developing resources for ongoing development programs for teachers, principals and staff, as well as a series of school-based community education sessions for parents and children with and without NF.
These will provide much-needed training to equip schools with the knowledge and strategies
to effectively support students with NF and their families.
Support the planning and execution of a community engagement event, including logistical support and promotional activities.
Assist in efforts to find and map NF patients in WA, potentially by utilizing existing contacts and approved NF Facebook group information.
* Our mission is to provide support, information and assistance to persons and their relatives suffering from or concerned with Neurofibromatosis.
* To increase education and awareness in both the public and professional arena
* Promote research into the cause and prevention of Neurofibromatosis and methods of alleviating its effects.